"You have come across mountains this last year and all of you have survived.....scarred (mentally & physically) but you all survived."
Since the news that Kevin's pheochromocytoma was benign...we've been enjoying every moment and every day like normal families do. It's almost as if we've picked up from where we left off a little over a year ago.
|the family that ROCKS together|
With the exception of the impending surgery on Kevin's hand/arm, we are literally back to our usual shenanigans. If I work late he picks up the boys at preschool. We went pumpkin picking and got lost in a local corn maze, pure fun. Trick or treating was extra special this year since Daddy was with us. The usual burping & farting contests with Daddy. Wrestling with Daddy again. Sharing the parent load is for sure back to both of us. Kevin can help with bathing the boys. We can have dinner without Daddy having to get up to take medication. We can go out on date nights without a hospital mask. Sending Kevin to the grocery store for milk is something I can rely on again. All wonderful news.....
So why in the hell do I feel lost? Did someone fire me and I'm still sitting at my desk like an idiot?
If I'm being honest then I have to admit that I think I'm having trouble remembering me. The life of a caregiver always takes a back seat. And if that caregiver has kids, well then that back seat is further back.
If you think about what has literally happened in a year's time....It can be compared to that of what most couples experience during their 60's, 70's or 80's, right? I did everything for him. I bathed him, helped him get dressed, helped him learn how to live with one hand really... we learned together that living with an LVAD was in fact do-able. Medication management, chauffeur, doctor appointments, fighting Mr. Insurance (still not ready to talk about it), therapy (both physical & occupational), took on the weight of his emotional distress whenever needed, always smiling saying that it would all eventually be behind us. Now let's add on top of that our twin 4 yr old boys. I'm a mother too. Wait, correction... that's working mother. I had zero time for me. Yes, I was fine with it. I don't regret anything because there isn't anything I wouldn't do for Kevin, my children, my family, and friends included. I made certain that the three most important men in my life had what they needed... did I go without in the process? At times yes. I was OK but I'm now finding it hard to find me again.
Let me try and explain a little better.
We are back to normal again. There are no more life threatening situations at our front door (knock on wood) anymore. The survival mode that kicked in from October 7, 2010 has now turned off. I'm physically here but it's like sitting in an audience waiting for the show to start. Where the fuck am I? Again, did someone fire me? Is this what empty nesters go through when their kids go off to college?
I sort of have so much free time for "me" that I don't know what to do with myself sometimes.......now presents the issue I've been dealing with the past few weeks. Weird memory association. Flashbacks. I recently gave away all my clothes that smelled like the hospital. Things that family members used while they were here during the beginning...like pillows, blankets, sheets, etc... it's all in the trash. I've gone as far as avoiding some of my twin mama friends because I couldn't bear to see their faces because I was having a horrible flashback that morning. Even certain teachers at our sons preschool give me flashbacks. My brother came to visit in September...as I was dropping him at LAX I had a flashback of last year. Kevin's parents were just here...stayed with us for a few nights... same thing, bad memory association when I saw them. It happened practically every morning. Not their fault. Just bad timing maybe? I don't know. I need to let go and move forward. Blogging right now...typing it all out...crying in the process.... extremely cathartic.
|the monks at the beach...|
|me & kev lost in the corn maze|
with the boys